The links below are to websites that have tools or information that may help parents of children with CVI better navigate this complicated disease and the slow visual development that is typical of the condition.
Washington Talking Book & Braille Library | WA Secretary of State: https://www.wtbbl.org
The American Foundation for the Blind: www.afb.org (textbooks associated with education of children with CVI).
The American Printing House for the Blind: www.aph.org (products for students with CVI).
The American Conference on Pediatric Cortical Visual Impairment: www.childrensomaha.org/continuinged (yearly interdisciplinary conference for professionals and parents, usually held in late June).
Facebook groups: CVI Neuroplasticity Research Group, CVI Phase III Community, CVI Connection.